自閉症の危険因子を調査する為の家族登録(米国)

30
Nice!

11月中旬のニュースからです。
自動翻訳で記事を読むと
『米国の小児科学会は たとえ両親が少しの特定の懸念が無くても、全ての子ども達が 18〜24ヶ月の年齢で、自閉症の有無に関してスクリーニングされるようすすめている ガイドラインを発表しました。』とありました。150人に1人が自閉症・・・
日本はいつまで とろとろしているんだぁ〜〜〜☆と思いますよね・・・。

一生懸命に療育しても、せっかく がんばって来たのに・・・子どもが望む学校の姿がありません。
なんだか変じゃありませんか? 高等養護学校は勉強をしないしな〜〜いくら、就労100%をめざしているったって・・・基礎教育は必要でしょう〜〜〜遅れている子にこそ、しっかりと発達ができる教育をしていただきたいと 強く思います。そのためには、能力が高く、指導力のある先生が必要です。
いつまでも 特別支援教育(特殊教育)に 能力のない先生を飛ばす!という体制ではいけません。手当をつけて まるで左遷のようにして 障害のある子ども達に迷惑をかけるような人事は やめてほしいと思います。
義務教育の公立小中学校には比較的 人的支援が手厚いのに、高等養護学校になると 人的支援が急に薄くなるような気がします。高等は義務教育じゃないから・・と言われそうですが・・英国だって義務教育ですよ!やっぱり日本は 英国がやらないと・・・と思っていましたが、英国は義務教育になったのだから、日本もがんばって義務教育にしてください〜〜☆と思います。
もっと手をかけて教育をしてほしい。そこには 能力が伸びる可能性のある子ども達が たくさんいると思います。学校は能力が伸びる、学力が上がる教育をしてください!と 強く言いたいです☆

「勉強したい」「勉強が楽しい」という 障害のある子どもは いったいどうしたらいいんだい?=親が考えて「教育の環境を創る」しか方法は無いんだけどね・・・わかっちゃいるけど・・言ってみました(爆)

Family Enrollment Begins In Largest Study To Investigate Risk Factors Of Autism

Researchers from Kaiser Permanente and the California Department of Public Health, as well as from five other sites nationwide, are now enrolling families in the largest study to date investigating the genetic and environmental factors that may cause autism and other developmental disabilities.
The five-year research study, called the Study to Explore Early Development, will involve 2,700 children and their parents from six areas around the nation, including Santa Clara and Alameda counties. The study is open to both Kaiser Permanente members and non-members with children who were born from September 2003 to August 2005 in Santa Clara and Alameda counties. Children with autism and other neuro-developmental impairments (developmental delays), as well as children with typical development, will be studied and are being recruited.
"We hope this study will help us learn more about the factors that may lead to autism and other developmental disabilities, and how genes and the environment may affect child development," said Lisa A. Croen, PhD, the study's local principal investigator and an epidemiologist with Kaiser Permanente's Division of Research in Oakland, Calif. "The results may also contribute to better services and treatments for affected children and to prevention strategies."
For reasons not fully understood, autism is on the rise, affecting on average about one in 150 children born in the United States, according to the U.S. Centers for Disease Control and Prevention, which also is involved in this study. The chronic, lifelong condition affects the normal functioning of the brain, impacting development of social and communication skills. The American Academy of Pediatrics recently released guidelines recommending all children be screened for autism between the ages of 18 and 24 months, even if parents haven't expressed any particular concerns.
"The new national recommendation for regular screening of children for autism has raised the community awareness of the importance of early diagnosis of autism in order to help children and families," said Dr. Marc Lerner, MD, FAAP, the American Academy of Pediatrics' Chair of State Government Affairs for California. "What is now needed is research like the SEED study to understand the reasons behind the dramatic growth in the diagnosis of autism, which will help us to address prevention and treatment."
Factors that will be studied include family medical history; genetics; and socio-demographic, lifestyle and environmental factors. Study information will be obtained by conducting interviews and exams, reviewing medical records, collecting cheek swabs, and blood and hair sampling, according to Pilar Bernal, MD, medical director of Kaiser Permanente's Regional Program for Autism Spectrum Disorders. Kaiser Permanente maintains two autism centers -- one in San Jose, Calif., and another in Rancho Cordova, Calif., a suburb of Sacramento.